How Cool is That!!!!

I’m really not great at fundraising…I need to get over that as I have a non-profit now that I need to learn to raise funds for. Most of my life I have volunteered my time…working soup kitchens, delivering meals to the homebound and handicapped, providing musical entertainment to the lonely. When I get calls asking me to donate money, I always say “I donate my time but not my money, do you need my time?”. Those calls usually end quickly.

But anyway, I went ahead and created a donation page under the name of my non-profit to raise funds for the Heat if To Beat It walk I will attend in Maryland in September. It’s a walk to help raise awareness and research funds for our cancers. I never checked the page as I expected no response, but figured I would donate to my own Heat It to Beat it site (at least $100 as those who raise $100 get a T-shirt to commemorate the event. I’d like the T-shirt since I’ll be traveling out there from Chicago and am kind of sentimental about the event. I really want the T-Shirt!).

For the heck of it I checked my “Heat it to Beat it” site, and Oh My Gosh!!, I have two donations totalling $250!!!! I was blown away!!! And those who donated left comments that made me feel SO good! “Thanks for all of your work on the website. It has helped my family greatly.” and “2 year survivor signet ring appendix cancer. Go Carolyn!”. Thank you so much Ginger and Emery!! I hope you read my blog so you know how grateful I am! I never expected anyone to donate to that site.

I’m working 40 hours this week, but in the nursing world, if your relief doesn’t show up for the next shift, you are “mandated”, you have to stay another shift or risk losing your license and job for “patient abandonment” if you go home when you were supposed to. All bets are on that I will be “mandated” this weekend, as the nurse following my Saturday shift calls off more than she shows up for work. So I’ve decided if I am mandated for that extra shift, I will donate the money I earn on that shift to my “Heat it to Beat It” page.

Maybe I’ll donate a shift even if I don’t get mandated, because now I’m inspired!

Thanks again!

Scientist-Survivor Program

I have been involved with AACR’s the Scientist-Survivor Program since 2008.
It is a marvelous program. Fun story of how I got involved there, a woman found my appendix cancer web site and emailed me. She was a renal cancer survivor of many years (not sure how she came upon my site?). She loved what I was doing and we developed a friendship. She was an advocate for renal cancer patients and cancer patients in general in our state government (turns out she only lived 30 miles away from me!). She had become involved in the Scientist-Survivor Program and was determined that I become involved too. She encouraged me to apply to the program, said I HAD to be a part of it. I needed a recommendation letter as part of my application, which she wrote for me.

I was accepted into the program and attended my first AACR annual meeting in 2008. I was blown away. The conference was huge, with 17,000 cancer researchers, oncologists, nurses and survivors attending. There were hundreds of presentations offered from scientists revealing cutting edge cancer research findings. I learned so much…and I love to learn.

The Scientist-Survivor Program accepts about 30 of us a year to attend the annual meetings. All of us are cancer survivors who have become advocates. As part of the program we all get to spend time together and learn from each other. It’s an amazing group, I was so inspired by many cancer advocates. We learn so much at the annual meetings. We are able to share what we learn with others in the cancer community when we return. We are also treated very well. We have a Scientist-Survivor meeting room at conferences where we can all go to have meals together, there are special presentations for those in our program, we get to meet personally with some of the cancer research scientists (that’s how I met one of the founders of Stand Up to Cancer).

The Scientist-Survivor Program was the brainchild of Anna Barker (see her here in a news interview), the Deputy Director of the National Cancer Institute. Via the program I have met and spent time with her…and I’ve come to idolize her. She is brilliant, passionate and caring. She lost all of her family to cancer and has made it her life’s mission to see cancer defeated. She is now one of my heros (and I don’t have many!)

I’ve copied the goals of the Scientist-Survivor Program from their web site below. I so encourage any survivor advocates to apply to this program, it is life-changing!

Goals of the AACR Scientist↔Survivor Program

Broaden survivor and patient advocates’ understanding of fundamental topics in cancer research and expose them to the cutting-edge science that is accelerating our progress against cancer today.

Develop an informed constituency of survivor and patient advocates who work in the larger cancer community.

Increase awareness on the part of scientists and survivor and patient advocates of the many ways in which they can collaborate to support, influence and strengthen cancer research.

Develop synergistic collaborations among scientists and advocates to increase funding of cancer research, increase participation in clinical trials, improve the design of clinical trials, increase the number of effective cancer drugs, and facilitate access to cancer information for the general public, high-risk individuals, and minority and underserved populations.

Provide laboratory and clinical scientists with the opportunity to gain a more personal understanding of the enormous impact of cancer on patients and their loved ones.

Expose scientists to the key concerns of survivor and patient advocates, which include survivorship, quality of life, science and public policy, and other important issues.

Disseminate the knowledge and new perspectives acquired through the program to a vast and diverse audience.

Create mutually beneficial and enduring partnerships among advocates and researchers.

Stand Up to Cancer!

On September 10th, Stand Up to Cancer will again host a multi-network television research fundraiser. Fun thing, I was able to meet in person one of the founders of Stand Up to Cancer in 2008. He is a brilliant cancer researcher and scientist I greatly admire and personally like a lot. He is truly dedicated to finding a cure for cancer and is very inspirational. He has passion that is contagious.

Stand Up to Cancer strives to raise funds for innovative cancer research.

Seventy percent of the funds collected go to fund cancer research “Dream Teams”, bringing the best research minds together to look for cancer cures. Dream Teams seek to bring some of the best scientists working together in looking for answers, combining their knowledge and resources vs. working independently in their own corners of the world.

Twenty percent of the funds raised are used to fund research that is “out of the box” and would not likely otherwise be funded by anyone.

Ten percent of the funds are used to maintain Stand Up to Cancer.

I kind of think the answer to cancer will be something “out of the box” in the end.

The telethon will air on E!, The Style Network, G4, ABC, NBC, CBS, FOX, HBO, Bio, Discovery Health, HBO Latino, MLB Network, mun2, Showtime, Smithsonian Channel, TV One and VH1 simultaneously at 8pm (7pm Central time) on September 10th.

I think just the three major networks aired it simultaneously last time. Maybe one day it will be on every TV channel simultaneously, the only thing to watch!

When the 2008 telethon aired, at one point so many donations rolled in at once that the software or whatever crashed for a bit, so some funds were lost. I don’t think they expected that big a response. I’m sure this time they will be prepared for it.

Cancer has affected ALL of our lives; even those who have never been diagnosed have had someone in their life struggling with or losing a battle with cancer. We all want to see cancer defeated. It’s a cause we can all be united for. Maybe Stand Up to Cancer will be the force that unites us and helps us work together to forever be rid of cancer?

Offending web site is down!

I just received an email from the legal department of web host of the Mesothelioma site as I reported them for copyright violation. It said: “We have contacted the owner and have requested the violation be removed, or we have removed the offending website. If you ever come across sites that are violating our Policies, please feel free to contact us again.”

I just checked the site…Mesothelia Treatment Options . It is down!!!! At least temporarily (until they remove plagiarized posts).


This is kinda fun now…..

Well, the post I did identifying the Mesothelioma Treatment Options site as plagiarizing my posts was also siphoned and is now on their site, so now they have a post advertising their own plagiarism!!! This is kind of fun! See it here:
Mesothelioma Treatment Options.

It’s obvious they plagiarized that one too as it’s posted on my blog the 14th and on their blog the 15th.

I was able to easily locate their web host, and I filed an abuse complaint against the Mesothelioma Treatment Options web site…we’ll see where that goes!