by Carolyn Langlie-Lesnik | Aug 14, 2010 | Uncategorized |
Alice did a search of the site “Mesothelioma Treatment Options
The Most Comprehensive Mesothelioma Online Site“. It turns out they’ve plagiarized at least 5 of my posts from the Appendix Cancer Survivors blog. Alice found them just with a quick search, there are probably more:
http://tumormesothelioma.com/the-cancer-community.html
http://tumormesothelioma.com/more-help.html
http://tumormesothelioma.com/after-cancer.html
http://tumormesothelioma.com/advocating-for-yourself.html
and now my most recent post: http://tumormesothelioma.com/interesting.html
They are also plagiarizing other sites.
The comments to their posts that Alice and I submitted were never published.
Makes me sad that their are people in the cancer support community that are willing to use other patients and survivors….
Let’s see if THIS gets siphoned! 🙂
by Carolyn Langlie-Lesnik | Aug 13, 2010 | Uncategorized |
I was googling Heat it to Beat It, to find their home page, as I was hoping it was high up on the Google ranking, and I turned up this website…they had copied and pasted my own Heat it to Beat It August 11 post from my blog (after they removed the link to my personal fundraising page) and claimed it was written by “Mesothalioma Treatment Options”. Kind of strange! I wouldn’t have minded if they had linked to my blog or stated me as their source, as I want the event to get a lot of attention. But….
See it here on the Mesothelioma web site, the site that is plagerizing my posts from the Appendix Cancer Survivors Blog.
I today added to my site “If you use my posts/content, please link to my site or credit the source” along with a notice that I am now protected by “Copyscape”, so do not copy my content.
I don’t think I’m such a great writer, but I still want to own what I write, I guess? It come from my, and only my heart. Not someone else’s.
by Carolyn Langlie-Lesnik | Aug 11, 2010 | Uncategorized |
I just made plane and hotel reservation to travel from Chicago to Baltimore so that I can be part of the “Heat it To Beat It” walk September 19th to raise research funds and to increase awareness for those of us diagnosed with peritoneal surface malignancies.
Peritoneal surface malignancies are cancers that deposit tumors onto the lining of the abdomen. The abdomen and abdominal organs are covered by a thin membrane, like Saran wrap. The membrane is medically named the peritoneal membrane. Our cancers are “peritoneal surface malignancies”. These peritoneal membranes are the surfaces where cancerous tumors from the appendix form, also other cancers like ovarian cancers, some colon cancers, mesothelioma and primary peritoneal cancer (in primary peritoneal cancer and mesothelioma, the “Saran wrap” lining itself becomes cancerous).
All of these cancers are candidates for the same therapy, cytoreduction surgery (surgical removal of all tumors) and HIPEC, heated chemotherapy infused directly into the abdomen to kill microscopic cancer cells after surgery to help prevent recurrence of our cancers.
Many great surgeons and oncologists are unfamiliar with this treatment for our cancers, so we truly need to help both civilians and medical personnel become familiar with this treatment. These treatments are effective. Peritoneal chemotherapy (abdominal chemotherapy) offers benefits over IV chemotherapy for our cancers. We need to promote awareness, and we also need to raise funds for research. “Heat it to Beat” it strives to do both.
Dr. Sardi is a renowned specialist in these procedures. I have communicated with many of his appendiceal cancer patients. Over the past several years Dr. Sardi and I have also communicated via phone and email. Though we have never met, we truly respect each other. I will finally get to meet him on this trip!
Many of doctors Sardi’s patients and families have put together a 2.8 mile walk in Baltimore’s Inner Harbor to increase awareness and to raise funds for research for our cancers. Dr. Sardi sent me an email awhile ago inviting me to attend the walk and to meet him. I am proud to do so.
I don’t know how many of Dr. Sardi’s patients read my blog, but if you are out there and plan to attend the, I SO hope to meet you!!! I know I have communicated with many of his patients over the past 5 years. So if you will be there, please email me and give me a heads up so we can meet real time!! And I encourage anyone who lives close enough to attend to participate, it will be great!
If you want to view the walk’s web site, the link is Heat it To Beat It
If you are interested, my personal fundraising web page for the event is Carolyn’s Page
And Alice, thank you SO much for your comment and your support of me. You are right, we do all need and deserve an occasional break from the cancer boards, blogs, websites. Thank you for understanding…and I’m sure you’ve also helped others who need that break! You are terrific!
by Carolyn Langlie-Lesnik | Aug 10, 2010 | Uncategorized |
I’m sorry I’m blogging less here. I am writing less in general. I have always written a lot in a multitude of forms…journals, poems, essays, more recently blogs. I’ve written a lot since about the age of 13. So this is unusual for me. I’m at a sort of strange crossroad. Cancer and survivorship have defined me and much of my writing since my diagnosis in 2001. A cancer diagnosis overwhelms your life, as does treatment, as does survivorship. It’s ongoing and life-altering for many years. All we want after our diagnosis is to return to our “before cancer normal”. Something we really can’t do. We have to create a new normal after cancer. We are never who we were, our lives are never what they were before diagnosis.
I think a part of me is rebelling. I want to try to do life without thinking about cancer…at least a little bit. I read a book once about a physician cancer researcher who was diagnosed with a uniformly fatal cancer. He over-dosed himself on the standard chemotherapy for his cancer and almost died from the effect (he could do that, he was a physician). When he had survived past his life expectency, he gave up his cancer research and his medical career and went to live somewhere on a remote island. He couldn’t live in the cancer world anymore, he didn’t want anything to do with medicine. He ran away. I don’t know if his physically running away helped him to mentally leave his cancer diagnosis (I’m guesing not). But he wanted to try to find a new cancer-free “normal”.
I won’t ever go that far ever. I truly believe I am meant to stay in the cancer community. I still answer many emails from newly diagnosed appendix cancer patients, and I love being able to do that. In less than 30 days, I will begin graduate nursing education in oncology. Next month I will probably go to Maryland to meet one of the leading appendix cancer specialists and to participate in “Heat it to Beat It”.
I feel that I was given the gift of surviving my terminal diagnosis so that I could help others navigating the rare cancer medical maze. I truly feel I survived for that purpose. Is it a coincidence that I was diagnosed with the most aggressive form of appendiceal cancer at Stage 4, happened to be a medical professional who had spent years teaching lay people about their diseases and who before diagnosis happended to be fascinated by rare disease…I don’t think so. I believe in Divine appointments, and I think my diagnosis and experience (and survival) was given to me so I could help others diagnosed with this rare cancer. It’s my life purpose.
But just for a little bit, I’ve let myself feel safe from cancer, from the uncertainty, from cancer testing. I’m living a life not focused on the vulnerability cancer makes us feel. My husband and kids and I just did our annual “family vacation”. Just the four of us, out of town and spoiling ourselves for a bit. Spending time together as a family; mom, dad and kids.
I don’t know how many more years we will be able to do that…in a few years my kids will probably have their own families to vacation with…but I hope they continue the tradition with their own families we’ve had for many years. So I’m enjoying it!!
