Your Questions are Needed!!!

I need your help! Dr. Sardi, a renowned appendix cancer specialist, will be participating in our Video Meeting. I need questions any of you would like to ask an appendix cancer specialist. He will be doing a webinar for us! Please email your questions ASAP to:

carolyn@appendix-cancer.org

Look forward to seeing your questions!

What you need to know

Wanted to post this.   I have a new patient who attended our Zoom meeting and read my website.  She compiled this list of things she learned.  I liked her list a lot!

These are some key messages running through the materials on your website, and they surfaced quite naturally in the Zoom meeting. For example…

  1.  the importance of self-advocacy – practitioners can’t be experts in all rare diseases and probably won’t have time to research yours, and it’s your life in the balance
  2.  appendix cancer is not just another form of colon cancer – it requires different treatment
  3.  the need to get advice from a recognised expert in appendix cancer as soon possible – before starting a treatment plan
  4.  that extent of tumours does not mean that your cancer is untreatable
  5.  cytoreduction and HIPEC is the treatment of choice, but you need someone who is an expert in cytoreduction to get the best possible outcome
  6.  some specialists are much better than others, it’s ok (and maybe even vital) to shop around,and you may need to travel to access the care you need.
  7.  if specialist expertise isn’t accessible to you, perhaps due to Covid travel restrictions, you may need to engage, educate, and connect your physicians to expert advice.

Virtual Support Group

Our virtual support group met online today and it was GREAT!   There were 6 of us there and we were international!  One from New Zealand and one from Hungary, the rest from the USA.  It was so good to be able to see and talk to everyone, even though it would have been nicer if we could have all met for lunch.  Never know, maybe someday!

We have decided to meet once a month.   It will continue to be Saturdays at 12 noon Central Time as that time worked even for the international attendees.

We are meeting on Zoom and I will send out invitations a week before the next meeting.  To request an invitation, click “Video Meetings” on the home page (www.appendix-cancer.org) and sign up to receive invitations to the support group.  Would love to see you there!