Loved what my site designer did!  At the top of my web site  there  is now  an “Old Site Archive” button, so my old website is still available with unchanged content and all links working until the new site is completed.  How cool is that!

Loved his “hard hat and goggles” note too 🙂

He is also going to set up Facebook and Twitter accounts for the organization, and also a blogging network on the web site to help patients find and communicate with each other. Pretty neat!  I’ve had several patients who want to connect to others with our diagnosis, so the social networking sites may help with that.

If you have any ideas/suggestions for the website, anything you wish it had or would find helpful, let me know!  Now’s the time!