For anyne interested in participating (I will!) below is information I was sent by Jessye Cohen, a doctoral student, about a survey for a study being done at Virginia Commonwealth University about social support networks after a cancer diagnosis.  I have participated in on-line and face-to-face support groups, so am interested in the subject.  While I think I prefer face-to-face support, for rare cancers like ours,on-line is sometimes a necessity.  They are really needing participants, so hope you will help!
Researchers at Virginia Commonwealth University are conducting a survey of individuals who have been diagnosed with cancer in order to understand use of different social support resources. If you are over age 21 and have been diagnosed with cancer, you are eligible to complete a 30-minute survey about your experiences using web-based and other tools or support groups. Please follow this link for more information and to participate in the survey:  Please feel free to contact me at with any questions or for more information.
Thank you for your time,
Jessye Cohen
Jessye Cohen, M.S.
Adjunct Instructor
Doctoral Student, Counseling Psychology
Virginia Commonwealth University