Just a quick post, more later, but there are a few emails I’ve been sent that for some reason I’ve not been able to reply to, the replies bounce. If you are someone who has not heard back form me, can you email me again? Or you can call me! One of you was a researcher I am very interested in communicating with.
Will be back with more soon!
Carolyn
Hello
My name is Nicole Oelke. I was diagnosed 17 months ago one week after my c section with my son. I’ve been seen at Mayo Clinic in Rochester MN as I live in southern MN. Mayo told me my only option was palliative chemo which I did for 6 months before going to Huston Tx for a second opinion. I was told I would need to do some stronger chemo in order to shrink some of the mucin and tumors. I then went to the University of MN physicians for another opinion. The surgeon there had very little experience and said I was not currently a candidate but with some more chemo I may be able to have the surgery.
At this time I’ve had very aggressive chemo and have lost a lot of mucin but I need to find a better surgeon with more experience. But the search is stressful and I have no one helping me. Any advice on what to look for with a surgeon. I just want someone who is willing to take a chance on me. I have two very young children who need their mom to live longer than a few years.